Transition to Adulthood for Individuals with Developmental Disabilities

December 28, 2015

adults with disabilities

Planning for the “Cliff” For many teens, the transition to adulthood will begin as they graduate from high school and move onto college or their first job. It’s a time of great excitement and a big milestone in a young person’s life. For those with developmental disabilities and their families, this transition is an even more immense and monumental milestone in their lives. Not only are they experiencing similar feelings of excitement and anxiousness, but they are also embarking on a change that will transform the services and support they have come to expect, as well as their relationships and…Read More

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Sensory Overstimulation during the Holiday Season

December 18, 2015

Sensory Overstimulation during the Holiday Season

The holiday season can be a joyous time of celebration with family and friends. It can also be a very difficult time for children with sensory processing disorders. Parents often struggle to find a balance between traditional holiday celebrations and meeting the unique sensory needs of their child. It is important to remember that the holidays are a time to cherish one another and to enjoy being together. Adapting celebrations in order to ensure your child with sensory needs is included and happy will guarantee the entire family has the chance to experience the magic of the holiday season. Planning…Read More

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Therapy Activities for Engagement

December 16, 2015

Motor Planning

Too often the therapist arrives at a patient’s home and the child is slow to engage in therapy activities or even separate from the parent or caregiver. NOW, the question is what to do to help the child separate more easily and prepare the child to engage in therapy activities. It is always easier to engage a child if you have a variety of tool techniques in your TOOL BOX. These are just a few tools that may be helpful to the therapist and the parent. Tool Box Infant Massage Infant massage techniques provide non-threatening touch in an easy delivery…Read More

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The Power of Choice

December 15, 2015

The Power of Choice

Do you remember the days when airlines used to offer you a small hot meal on flights that occurred around dinner time? Do you remember sitting in your seat and hearing the stewardess offering a choice to the people in front of you?  From three rows ahead you hear, “Sir, would you like the mystery meat or the notorious noodles?”  Instantly, you say to yourself, “I’m going for the notorious noodles,” and you begin to psych yourself up about how you’re going to dig into those noodles. When the stewardess gets to you, she says, “Sir, I’m sorry to inform…Read More

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What is Twin to Twin Transfusion Syndrome?

December 7, 2015

Microcephaly

What is Twin to Twin Transfusion Syndrome? Twin to twin transfusion syndrome (TTTS) is a rare, serious condition that can occur in pregnancies where two or more fetuses share a single placenta.  A majority of identical twins share a common placenta and as a result, the blood supplies of these fetuses can become connected. These connected blood vessels allow blood to circulate from one twin to the other. Depending on the number, type and direction of the interconnecting blood vessels (anastomoses), this blood transfer can become disproportionate from one twin (referred to as the “donor”) to the other twin (referred…Read More

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Epic Superstar: Jason

November 30, 2015

Jason, an amazingly inspiring young man, has been with Epic Health Services (formerly Nurses to Go) since August of 2012. He’s 18 years old and daily tackles the challenges of multiple physical ailments including fetal alcohol syndrome and a cleft lip and palate, in addition to diabetes insipidus, epilepsy, ADHD, speech apraxia, microcephaly, RLS, obstructive sleep apnea, haloprosencephaly, and developmental delays. Jason was placed in a residential facility for children with disabilities at the age of one. It was there Jason would meet his adoptive mother who, along with his adoptive father, had custody of Jason for eight years, until…Read More

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Holoprosencephaly Awareness & Therapy Treatments

November 28, 2015

Holoprosencephaly Awareness

A Congenital Brain Disorder Holoprosencephaly is a congenital brain disorder caused by a failure of an embryo’s forebrain to divide to form bilateral cerebral hemispheres (the left and right halves of the brain), causing defects in the development of the face and in brain structure and function. Also referred to as HPE, this brain malformation can range from mild to severe and is classified into four types: Middle Interhemispheric Variant (MIHV) is where the middle of the brain (posterior frontal and parietal lobes) are not well separated. Lobar, considered mild, is where the brain is divided and there are some…Read More

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FOXG1 Awareness Month

November 25, 2015

FOXG1 syndrome

In 2013, The International FOXG1 Foundation was founded by parents of children with FOXG1 – a severe neurological condition characterized by seizures, the inability to control body movements, and a lack of speech. The goal of the Foundation is to build awareness of the FOXG1 condition, provide support and inspiration to families with affected children, and raise money for research. Infants and young children with FOXG1 syndrome will often have feeding problems, sleep disturbances, seizures, irritability, and excessive crying. The condition is also characterized by limited communication and social interaction, including poor eye contact and a near absence of speech…Read More

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Epic is Improving Life for Children and Adults with Osteogenesis Imperfecta

November 24, 2015

osteogenesis imperfecta

Osteogenesis Imperfecta (OI) Life with the debilitating condition, osteogenesis imperfecta (OI), can be challenging.  Characterized by fragile bones that break easily, weak muscles, and loose ligaments, osteogenesis imperfecta is a genetic bone disorder – also known as “brittle bone disease.”  As the name implies, children with osteogenesis imperfecta can suffer fractures from some of the simplest day-to-day activities; changing a diaper, being lifted or burped, or beginning to stand and walk can all cause injury. For parents, this can be scary and overwhelming. Osteogenesis imperfecta is a complicated, variable, and rare disorder with approximately 20,000 to 40,000 known cases in…Read More

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22q Awareness: The Second Most Recognized Chromosome Disorder

November 23, 2015

22q11.2 Deletion Syndrome

What is 22q? “22q,” technically known as 22q11.2 Deletion Syndrome (22q11.2DS), is a disorder caused by a missing piece of the 22nd chromosome. This microdeletion in chromosome 22 can affect almost every system in the human body. 22q deletion is the second most recognized chromosome disorder, following Down Syndrome. Every child born with 22q deletion presents a unique set of the possible 180+ symptoms, and medical professionals have only recently begun to recognize these symptoms as indicators of 22q deletion. Due to a combination of the mentioned circumstances, this disorder can take years to correctly diagnose. 22q deletion health and/or developmental issues…Read More

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