American Heart Month: Putting the Spotlight on Congenital Heart Defects

February 14, 2017


When you hear about heart attacks and heart disease, the first things you may think about are risk factors such as diet, obesity, or unhealthy lifestyles. However, there are a significant number of children born yearly with a heart defect who are already at risk. According to the CDC, 40,000 children are born each year with a congenital heart defect, which equates to 1 in every 100 births. What is a Congenital Heart Defect? A congenital heart defect (CHD) occurs when part of the heart or blood vessels does not fully develop or abnormally develops during pregnancy, affecting the flow…Read More

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Moebius Syndrome: What You Should Know

January 25, 2017

moebius syndrome

Moebius Syndrome (MBS or Mobius) is a rare neurological condition that can create physical, emotional, and social obstacles. Because the condition is rare, many people know little or nothing about MBS, its symptoms, and its effects on quality of life. Spreading awareness about the syndrome can help end the social stigmas that patients often face. In the spirit of education and awareness, here are our top facts about Moebius Syndrome: What are the Symptoms of Moebius Syndrome? This neurological condition can have several symptoms that primarily involve the muscles in the face. Most notably, people with MBS do not have…Read More

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How to Help Parents with a Premature Baby in the NICU

November 9, 2016

Premature Baby

The chances are that you or someone you know have had a baby born prematurely – before 37 weeks of pregnancy. After all, the Centers for Disease Control and Prevention (CDC) states that 1 in every 10 babies born in 2014 made their debuts early. While many organizations are working to lower this number, an estimated 15 million babies continue to be born too early every year. Many of these babies will spend time in a Newborn Intensive Care Unit (NICU) and have talented medical professionals care for them around the clock. Understandably, this is difficult for parents who watch…Read More

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Stop Infection Before it Hits

October 25, 2016

infection prevention

How You Can Break the Chain of Infection You know the feeling: you wake up and everything hurts. Your head is splitting, your nose is running, and your body aches. Despite all the plans you had for the day, you slowly come to terms with the fact that you have an infection. If you’re a parent, you start wondering if the kids already have it and how to prevent it if they don’t. One thing’s for sure: waking up sick is not a great way to start the day. Whether it’s the flu, the common cold, or something more serious,…Read More

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Fact vs. Fiction: Down syndrome

October 17, 2016

down syndrome awareness

Knowledge and understanding of Down syndrome has come a long way. The first confirmed case of the disorder was found in a person who lived about 1,500 years ago and it wasn’t accurately identified until 1866. Despite all we know about its causes, risk factors, and the wonderful people who live full lives with it, many myths still surround Down syndrome. Here are a few of those myths and the facts that bust them: Fiction: Life with Down syndrome is sad Fact: People with Down syndrome can live full, productive, and happy lives. Parents of children with Down syndrome often…Read More

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Living with Celiac Diease – A Gluten Free Guide

October 3, 2016


If you or your child has been recently diagnosed with celiac disease, you may feel overwhelmed. While this feeling is understandable, there is plenty of hope for people with celiac disease. Here’s a quick guide to get you started on your gluten-free journey. What is Celiac Disease? The Celiac Disease Foundation defines the disorder as, “a serious genetic autoimmune disorder where the ingestion of gluten leads to damage in the small intestine.” While the damage occurs in the digestive tract, the symptoms can affect the whole body. Check out this list for some of the most common symptoms. At this time,…Read More

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What Parents of Children with Microcephaly Want You to Know

October 2, 2016


  By this time, you’ve no doubt heard about Zika. As the number of cases around the world has increased, so has media coverage. Much of the fear surrounding Zika has been due to a birth defect it is believed to cause: microcephaly. Microcephaly is a relatively rare condition that affects an estimated 2 to 12 of every 10,000 babies born in the United States.  As many people now know, one of the hallmarks of microcephaly is an abnormally small head. The condition can also cause both physical and intellectual delays in development. However, this diagnosis does not define the…Read More

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What It’s Like to be a Child with Spina Bifida

September 26, 2016

As a society, and in our community, we often use the term “special needs” to describe people who are differently abled. The term encompasses people with a whole host of different disabilities and syndromes. It’s become an easily recognizable way to identify a certain group of people. But have you ever stopped to think of what the term really means? To have special needs is to have an extra set of requirements that, if met, will allow you to lead a relatively healthy, safe, and fulfilling life. What unique needs does a child with spina bifida have? To fully answer…Read More

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How to Talk to Your Children About Their Sibling’s Hydrocephalus

September 14, 2016

Hydrocephalus Awareness Month

How to Talk to Your Children About Their Sibling’s Hydrocephalus For every 500-1,000 babies born in the Unites States, one will have hydrocephalus. It is one of the most common birth defects, and it can develop later in life. In fact, over one million people in this country are living with hydrocephalus. However, when it’s your child who is diagnosed with “water on the brain,” it’s so much more than a statistic. It’s your new reality. After the diagnosis, you may be overwhelmed with questions. You may think, “What does this mean for my child’s development? What is the surgery…Read More

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Newborn Screenings 101

September 12, 2016

Newborn Screening

Newborn Screening 101: History and Key Facts In the hours immediately following birth, new parents face what may seem like an endless stream of doctors, nurses, consultants, and other medical professionals who are there to ensure the child’s health and well-being. Amidst the chaos, wonder, and magic of the post-delivery days, new parents will meet a few medical professionals who will perform life-saving newborn screenings. To understand why these simple screenings matter so much, it’s important to look at the history of newborn screenings, what babies are being tested for, and what the procedures are. With a fuller understanding, it’s…Read More

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