Off to Camp We Go!

July 14, 2016

camp

You’ve invested a good deal of time researching the perfect overnight camp for your child with special needs. Now it’s time to put the plan into place, and help your camper embark on a successful and fun-filled overnight camp experience. A good preparation plan is key. And not only will preparation help your child realize camp-time is just around the corner, it also helps you in knowing you’ve done a great job in getting them camp-ready. Here’s a couple of tips to ease the way: Sign Up with a Camp Buddy – Kids will be less likely to feel anxious…Read More

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3 Tips for Preventing the Summer Slide

July 6, 2016

Your kids have been off for a couple of weeks now and like many parents, you’re probably beginning to get a little concerned with your children taking a 100% break from everything related to school and academics. This concern is not unfounded; there are numerous studies that indicate that the summer slide is a real thing, and that kids often loose months’ worth of academic skills over the summer (Borman & Boulay, 2012). The internet is filled with thousands of write ups and recommendations for preventing the summer slide, the summer slump, summer learning loss, etc. Google any one of…Read More

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Cri du Chat Syndrome – “Cry of the Cat”

May 26, 2016

cri du chat syndrome

The 5P Minus syndrome, also called Cri du Chat syndrome (or CdCS), is a genetic disorder caused due to a lack of a portion of chromosome  number 5. Those born with this missing or shortened chromosome have a distinctive “cat cry” or kitten-like cry (soft cry), due to an undeveloped larynx, which can deepen as a child grows older. Lower birth weight, smaller head circumference, and developmental delays are common in children with Cri du Chat syndrome. During May, the 5P Minus Society and Cri du Chat.org are working to educate others about this extremely rare condition that affects approximately…Read More

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Williams Syndrome Awareness

May 26, 2016

There are approximately 20,000 people in the United States with Williams syndrome (WS), and yet so little is known about it. That’s one of the reasons why the Williams Syndrome Association observes May as WS Awareness month. The goal in spreading awareness is to bring funding and resources to families with children and adults who live with WS – and help them realize their full potential. A ready smile, a love of music and a social personality commonly make up the unique profile of a person with Williams syndrome. While it is a genetic disorder, caused by the deletion of…Read More

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Texas Primary Runoff Election – May 24, 2016

May 24, 2016

election day

Today, May 24th, is a crucial election day for the state of Texas.  If you live in Texas Senate District 24 please make every effort to go to the polls and cast your ballot for one of these two candidates: Susan King, RN from the Abilene area.  Throughout her career as a member of the Texas House of Representatives, Susan has been a staunch supporter of nurses who work in any environment. Dawn Buckingham is an ophthalmologist in the North Austin area. This election is open to all voters regardless of political affiliation, so both democrats and republicans should vote. …Read More

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Spring Cleaning Tips for your Medicine Cabinet

March 18, 2016

spring cleaning

The weather is warming and spring is in the air.  When doing spring cleaning, don’t forget to look at your medications.  It’s a good time to look in your medicine cabinet and get rid of items that have expired or are no longer used. It can be easy to forget about a medication that you no longer need, or has been changed to an alternate therapy.  Spring cleaning can be a good reminder to check and see if any such items are in your home as it is important to dispose of them properly to help reduce harm from accidental…Read More

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Ivan Avila Greeted the Pope!

March 3, 2016

Spina Bifida

Though most with aspirations to meet and be blessed by one of the world’s most notable religious leaders, the Pope, will likely never have the opportunity to achieve this desire, Epic’s own Ivan Avila and his parents are among the few whose dream was realized during the Pope’s recent visit to Juarez, Mexico. Diagnosed at an early age with Osteogenesis imperfecta (also known as Brittle Bone Disease), Ivan has required specialized care to ensure he is best protected from potential accidents which can very easily break one or more bones. Living with this disease makes everyday tasks much more difficult…Read More

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Jessica Dean, Our Rett Syndrome Warrior and Epic Supstar!

March 2, 2016

In honor of Rare Disease Day, we would like to bring some awareness to a condition that affects a small population but has profound impact on the lives of those who experience it. Rett syndrome is a “rare non-inherited genetic postnatal neurological disorder,” affecting nearly entirely girls, according to RettSyndrome.org. Most often diagnosed during infancy, Rett symptoms begin displaying themselves early. Marked by instances of severe regression in motor and verbal skills, Rett syndrome makes itself known through very evident physical symptoms. Jessica Dean, our March Epic Supstar, is a young woman in Union, Missouri, experiencing life with Rett syndrome…Read More

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An Epic Gift of Literacy

January 29, 2016

child literacy

Going above and beyond to help patients and their families is the Epic way; Lacey Grant and her North Texas clinics and branches are no exception to this standard. As a children’s author, Lacey is passionate about child literacy and understands the role it plays in mental development and its potential therapeutic benefits for children with reading or conversational delays. As an effort to support her patients, Lacey decided to create a program to collect a brand new book for each of the 700+ children in the local branches. Enlisting the help of her generous coworkers, Lacey was able to…Read More

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Happy Universal Children’s Day!

November 20, 2015

November 20 - Universal Children's Day

History of This Celebration Universal Children’s Day is observed worldwide every November 20th as a special day to acknowledge the importance of actively promoting the welfare of the world’s children. This day also commemorates the adoption of the Declaration of the Rights of the Child and the Convention on the Rights of the Child. Established in 1954 by the United Nations (UN), Universal Children’s Day aims to promote the welfare of children and encourage understanding between children all over the world. It was on this day in 1959 when the UN General Assembly adopted the Declaration of the Rights of…Read More

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