October 30, 2015

Hi! My name is Alexis Solis anDown Syndrome Awarenessd I have Down Syndrome. My parents tell me that I am a miracle baby and a blessing from God. When I was born, my parents did not know that I had Down Syndrome and I had to have several tests completed all over my body. After my diagnosis was confirmed, I still needed over 20 surgeries; two of them were receiving a tracheostomy and a gastrostomy button (G-button). I had my trach removed 5 years ago and I breathe on my own now. I don’t remember the last time I needed oxygen assistance.
Down Syndrome AwarenessI am now 10 years old and go to school every day. I have therapy 2 times a week and it helps me so much. I love to swim, dance, listen to music, read books and play with my beads. I absolutely love playing on my iPad while watching Barney. My nurses at Epic help me get ready for school, make sure I eat all my meals and remember to take all my medicine every day. The best part is my nurse gets to go to school with me and help me learn, too. All of my Epic nurses have been amazing, especially my current nurse Julie Barber and my nurse supervisor Desarea Murray. Everyone in the Epic Fort Worth Office always makes sure to give me big hugs when I visit with my Mom and Dad. When I go visit Cook Children’s Hospital and Children’s Medical Center all of my favorite doctors are always there to help me. I absolutely love when I get to see Dr. McGhee, Dr. Romaine Johnson and Dr. Hadeed.

I am growing and learning more every day. Some days are easier than others, but I am a fighter and my Epic nurses help me fight. Thank you, Epic!